Nous avons récemment été interviewés pour le blog « Patient Spotlight » de l'Alliance FD/MAS (texte en anglais):
From Hobby to Hope: How a Mother’s Love is Fighting FD/MAS in France
Whether you love the cooler temperatures of fall, or hate it, Aurélie Lagneau of France has given the FD/MAS community a new reason to be enthusiastic about sweater weather. This avid knitter has taken her skill with yarn and her love for her daughter to create a unique fundraiser, Supportive Skein, which has already raised $28,000 for FD/MAS research.