Nous avons récemment été mis en avant dans le Research News de l'Alliance FD/MAS pour notre premier don de $60k, grace à vous (texte en anglais) :
Association MASFD Gives $60K Research Gift with Support from FDF
The Fibrous Dysplasia Foundation (FDF) is proud to highlight the Association MASFD’s $60,000 donation to a globally renowned University of Iowa neuroscientist, Dr. Ted Abel. Dr. Abel is the Roy J. Carver Chair in Neuroscience and a member of the National Academy of Medicine and directs the Iowa Neuroscience Institute, which explores diseases of the brain and nervous system. Funding of Dr. Abel’s project “A Murine Model for the Central Nervous System Manifestations of McCune-Albright Syndrome” is expected to help researchers understand why some patients with fibrous dysplasia and McCune-Albright syndrome (FD/MAS) are affected by cognitive or behavioral issues, a poorly understood aspect of the disease.